So I had the VNG today. I had to wait 30 minutes after my scheduled appt, which drove me a little nuts because I was nervous about the test. It wasn't as bad as I had anticipated, but made me extremely dizzy. I actually got dizzy in the parking garage and it didn't go away until after we started the test. I had to follow moving dots in various patterns. And then he put cold, then hot water in my ear. That felt quite strange, but wasn't horrible. The hardest part was that they were tracking my eye movements, so I had to keep my eyes open as much as possible. And since I naturally blink a lot, that was difficult.
I was a little disappointed that the guy who did the test said everything looked normal on my way out. Is it bad that I was hoping this would should something is definitely wrong? But he said he would do the full analysis and let the doctor know. If it shows anything, he should be calling me. At the latest, I have a follow up 4/16. Maybe I'll get lucky and the supplements will start working. Although it's somewhat of an expensive solution.
And now, we wait again...
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I'm on riboflavin and intravenous magnesium sulfate - I started to have neurological and vision problems once they closed the holes in my heart. Most of it was aura, which lead to dizziness, which lead to queasiness and a migraine. I saw a neurologist in NYC, who put me on routine magnesium sulfate infusions. I felt relief instantly, and am still receiving infusions regularly. (I received one today, in fact.) Let me know if you want more info. I know it's been an easy fix for lots of my neurologist's patients.
ReplyDeletePS - before you start the magnesium supplements, they should do bloodwork to see if you have a magnesium deficiency.
Email me if you want info about the magnesium sulfate infusions. It's "sulfate" because that's the intravenous form.
racole27@aim.com
You're doing a great thing - pusing for answers.
I hope this all gets resolved soon!
-Rachel