More tests ordered

So nothing really new from today. I reported that the trileptal, migraine diet, and exercises were a FAIL. We discussed the one migraine I found that is okayed for breastfeeding - Imitrex. He commented that he wouldn't recommend it while breastfeeding, but it also wouldn't serve my purpose. There are apparently 2 types of migraine meds - one blocks them, the other reacts to them. There are more technical terms, but I'm exhausted and can't remember them. Imitrex is a reactor, and since the dizziness is happening every hour on bad days, it won't help much.

So we have decided on 2 courses of action for now.

1) On Thursday I will return for another test. Due to the symmetry, despite the high amplitude on the VEMPs, they are ruling out a dehiscience (sp?). So I will get a ENG/VNG on Thursday. It sounds like they will squirt water in my ear and see how my eyes react. I still have the nystagmus as recorded last time, so there is a strong suspicion that there really is an issue with my inner ear and that it isn't hormonal/migraine related.

2) Start taking a cocktail of supplements - magnesium, riboflavin (b2), and coenzyme Q10. They are all found normally in the body, so it won't pose a risk to Carolyn and could potentially help. I found some information online that magnesium can actually have positive effects while breastfeeding by regulating milk production between ovulation and menstruation, so that could be helpful. He did say that this could take 10-12 weeks to produce results.

So the good news is that stopping breastfeeding wasn't brought up today. I will be willing to discuss it at my next appointment 4/16, since that is after Carolyn's 1st birthday. Although since she still nurses 7-8x/day, I'm not quite sure how it will work. I guess time will tell though. Still no answers, but at least we're moving forward a little. I reallly hope we get this sorted out before I hit the 6 month mark. Only 1.5 months left before I get there though. I've started a file to keep track of my truly bad days, maybe we can discover a pattern. Today was a bad day.